I also want to vent.... - Sitcoms Online Message Boards

treky · 05-26-2009, 12:54 AM

and I don't think this would be right for the "COMPLAINT" forum.

As most of you know; I have a rare muscular condition called H.S.P. which stands for Hereditary Spastic Parapalesis. Well, since it causes gradual musle deteriaration, exercise is a MUST in order to keep muscle flexability. So, I've been taking physical therapy sessions regulary.

However, even though my mother, sister and brother say it looks like I'm getting better; my therapist recently told me that-I'm getting-worse. I didn't agree with her at first, but now that I think about it; sadly-I agree with her.

(there; I've admitted it)

I haven't asked my doctor yet what he thinks; but; I think that he'll agree since he's increased my meds.

OK; thanks for listening you guys. I subscribe to an H.S.P. message board, but I feel better posting on this one.

Marvo301 · 05-26-2009, 01:05 AM

Hey Joe, I'm sorry to hear your condition may be getting worse. Try and keep a positive attitude though. Maybe your doctor won't agree with the therapist. Maybe he'll agree with your family!

Nighthawk76 · 05-26-2009, 02:21 AM

I'm sorry to hear about this, treky. I hope that your therapist is wrong snd that your doctor will tell you that you are making great progress.

PunkyP0WER · 05-26-2009, 02:25 AM

i'm so sorry to learn about this. i'll be praying for you and hope that everything works out for you

LuLu Rogers · 05-26-2009, 03:08 AM

That's why you stay positive and keep working at your therapy so you can prove your therapist and your doctor wrong

beautifuldreamer · 05-26-2009, 03:10 AM

Quote:

Originally Posted by LuLu Rogers

That's why you stay positive and keep working at your therapy so you can prove your therapist and your doctor wrong

You said it, Lauren!

comedyfreak · 05-26-2009, 04:19 AM

That sucks Treky, maybe you could seek out another opinion, bring up the fact that you do feel better exercising.

OH Nuts! · 05-26-2009, 06:25 AM

Hi Treky. I'm glad you vented- I think venting is very therapeutic and this is a safe & supportive place for it. I hope you keep plugging away and prove that physical therapist wrong.

treky · 05-27-2009, 01:56 AM

thanks to everyone who responded!

Janice · 05-27-2009, 02:12 AM

I'm sorry to hear that your disease is progressing. I know you're fighting it tooth and nail, but these things have a mind of their own. I'm glad you got your meds increased. I hope that's helped. I also hope you're not in much pain, Joe. That's my issue. PAIN.

treky · 05-27-2009, 03:11 AM

thanx Janice; that really means a lot!

As I've said before, since your e-mail, I have sympathy for what you, Lauren and others with fibromyalgia are going through, and how painful it is for you.

Janice · 05-27-2009, 04:16 AM

Quote:

Originally Posted by treky

thanx Janice; that really means a lot!

As I've said before, since your e-mail, I have sympathy for what you, Lauren and others with fibromyalgia are going through, and how painful it is for you.

Please read the link in my signature. There's an important Bill going before the Senate for a vote. Please read. Thanks Joe.

AB · 05-27-2009, 04:49 PM

Sorry to hear you're not doing as well as you had hoped. As someone above mentioned it might be wise to see another doctor & get a second opinion. My thoughts & prayers are with you.

treky · 05-28-2009, 02:24 AM

Quote:

Originally Posted by Janice

Please read the link in my signature. There's an important Bill going before the Senate for a vote. Please read. Thanks Joe.

I read the link, and I clicked on it and sent the letter.

Janice · 05-28-2009, 02:47 AM

Quote:

Originally Posted by treky

I read the link, and I clicked on it and sent the letter.

It's for us.

05-26-2009, 12:54 AM	#1
treky star trek fan Eternal Member Forum Fanatic Join Date: Feb 25, 2002 Location: Conshohocken, pennsylvania Posts: 14,490	I also want to vent.... and I don't think this would be right for the "COMPLAINT" forum. As most of you know; I have a rare muscular condition called H.S.P. which stands for Hereditary Spastic Parapalesis. Well, since it causes gradual musle deteriaration, exercise is a MUST in order to keep muscle flexability. So, I've been taking physical therapy sessions regulary. However, even though my mother, sister and brother say it looks like I'm getting better; my therapist recently told me that-I'm getting-worse. I didn't agree with her at first, but now that I think about it; sadly-I agree with her. (there; I've admitted it) I haven't asked my doctor yet what he thinks; but; I think that he'll agree since he's increased my meds. OK; thanks for listening you guys. I subscribe to an H.S.P. message board, but I feel better posting on this one.
	__________________ the Clampetts are in a fancy Beverly Hills jewelry store. Granny points to a tray of rubies. Granny: "How much fer one o' them red diamonds?" clerk: "Madam, those are rubies." Granny: "OK ask her kin we buy one offa her." clerk: " The ruby I am talking about is not a lady." Granny: "Lissen, how she got them diamonds is her business. I'm just sayin' ask her kin we buy one from her."

05-26-2009, 01:05 AM	#2
Marvo301 I'm NOT a Blockhead! Forum Celebrity Join Date: May 17, 2002 Location: The Great White North Posts: 21,460	Hey Joe, I'm sorry to hear your condition may be getting worse. Try and keep a positive attitude though. Maybe your doctor won't agree with the therapist. Maybe he'll agree with your family!
	__________________ Only a life lived for others is worth living. Albert Einstein A life isn't worth living unless it has impact on other lives. Jackie Robinson Be always at war with your vices, at peace with your neighbors, and let each new year find you a better man. Benjamin Franklin

05-26-2009, 02:25 AM	#4
PunkyP0WER Member Senior Member Join Date: May 23, 2008 Location: MACY*S on 34th St. Posts: 1,908	i'm so sorry to learn about this. i'll be praying for you and hope that everything works out for you
	__________________ Faith is believing in things when common sense tells you not to. - Fred Gailey & Doris Walker It was the movie that no one thought would be a hit It was the sleeper a studio had no idea how to sell And its success was even more miraculous because this Christmas present was opened in June! Fred & Doris Gailey FOREVER! That's the magic of *macys**

05-26-2009, 03:08 AM	#5
LuLu Rogers Colonel Brandon Forum Fanatic Join Date: Mar 23, 2004 Location: The Hogwarts Dungeons Posts: 11,013	That's why you stay positive and keep working at your therapy so you can prove your therapist and your doctor wrong
	__________________ -Lauren- "I can teach you how to bewitch the mind and ensnare the senses. I can tell you how to bottle fame, brew glory, and even put a stopper in death."-Professor Severus Snape Last edited by LuLu Rogers; 05-26-2009 at 10:52 AM.

05-26-2009, 04:19 AM	#7
comedyfreak Cheers! Forum Fanatic Join Date: Dec 14, 2005 Location: Sunny California Posts: 11,061	That sucks Treky, maybe you could seek out another opinion, bring up the fact that you do feel better exercising.
	__________________ www.facebook.com/comedyfreak

05-26-2009, 02:21 AM	#3
Nighthawk76 Rachel Berry Forum Celebrity Join Date: Feb 28, 2003 Location: Illinois Posts: 23,254	I'm sorry to hear about this, treky. I hope that your therapist is wrong snd that your doctor will tell you that you are making great progress.

05-26-2009, 06:25 AM	#8
OH Nuts! Member Forum King Join Date: Feb 15, 2005 Posts: 133,383	Hi Treky. I'm glad you vented- I think venting is very therapeutic and this is a safe & supportive place for it. I hope you keep plugging away and prove that physical therapist wrong.

05-27-2009, 01:56 AM	#9
treky star trek fan Eternal Member Forum Fanatic Join Date: Feb 25, 2002 Location: Conshohocken, pennsylvania Posts: 14,490	thanks to everyone who responded!

05-27-2009, 02:12 AM	#10
Janice Retired Admin - Hollywood Swingin' Forum Legend Join Date: Aug 03, 2001 Location: Beantown Posts: 36,388	I'm sorry to hear that your disease is progressing. I know you're fighting it tooth and nail, but these things have a mind of their own. I'm glad you got your meds increased. I hope that's helped. I also hope you're not in much pain, Joe. That's my issue. PAIN.

05-27-2009, 03:11 AM	#11
treky star trek fan Eternal Member Forum Fanatic Join Date: Feb 25, 2002 Location: Conshohocken, pennsylvania Posts: 14,490	thanx Janice; that really means a lot! As I've said before, since your e-mail, I have sympathy for what you, Lauren and others with fibromyalgia are going through, and how painful it is for you.

05-27-2009, 04:49 PM	#13
AB Member Eternal Member Forum Icon Join Date: Dec 26, 2006 Location: The South Posts: 59,428	Sorry to hear you're not doing as well as you had hoped. As someone above mentioned it might be wise to see another doctor & get a second opinion. My thoughts & prayers are with you.