I'm FURIOUS! - Sitcoms Online Message Boards

Jo_Luvs_Ketchup · 07-24-2006, 01:40 PM

As I mentioned to some people, my brother, who is 16 and autistic (Aspergers Syndrome), was recently diagnosed with Muscular Dystrophy. I just don't understand. My brother went to a specialist and he's convinced he doesn't have it. They ran a special blood test on him (I think this is right, but don't quote me on it) and I think if they level is over 7, the person has MD. My brother's level was 15. The doctor is like, no let's do it again. My brother is petrified of needles, so he was terrible during the test. And they want to do another EMG on him, which they put needles in his back to see the nerves or something. I just don't understand, if they level proved he has it, why is he trying to make him "not" have it?? Is this even right?? My brother is going through a lot and I'm trying to help him but being autistic makes it worse, since he doesn't like ppl touching or talking to him. And now because of the MD, he has scoliosis and the back brace didn't work so he has to have surgery. If all this is from MD, why is he saying he doesn't have it? This a$$hole is a specialist?? Anyone know what to do?? My mother's about had it, she's ready to break and I don't know how to help.

Moonlight Lady · 07-24-2006, 01:58 PM

That's awful. Poor guy. Can your mom take him to another doctor for a second or third opinion? I'm sorry to hear that your brother and whole family are having to go through that. I'll definitely keep you all in my thoughts and prayers. Some people should NOT be doctors.

dawsongirl · 07-24-2006, 03:05 PM

Well, it sounds like to me the doctor is just trying to do every test possible to make 100% sure he does or doesn't. Sounds excessive and frustrating, but it makes sense.

But like Katie said, if you don't like the doctor, go to a different one. That's always your option.

KristinHerreraFan · 07-24-2006, 03:10 PM

I'm so sorry.

I'll be praying for your brother. I hope all goes well.

Courtnee · 07-24-2006, 03:27 PM

Aw. that's so sad. I'll be praying for him! I know how it feels though. My blood sugar was 200 this morning and it took an hour (no joke) to get any blood to come up and it hurt this time. But then my mom was astonished and made me do it again >_<

Brian Damage · 07-24-2006, 03:53 PM

I am so sorry to hear your brother and your family going through all this. Believe me, I can relate. I will pray hard for you to get answers and to be at peace.

Nighthawk76 · 07-24-2006, 06:00 PM

I'm sorry that your brother and the rest of your family is going through such a difficult time right now, Kelly.

LuLu Rogers · 07-24-2006, 06:07 PM

I'm sorry Kelly!

I will pray for your brother and your family. Maybe your family could try another doctor just to get another opinion. You never know.

Ireneparalegal · 07-24-2006, 06:33 PM

I am really shocked to hear this Kelly.

My late brother suffered for over fifteen years of Muscular Sclerosis. He eventually passed away in 2004. The hardest part was not knowing what would occur next; what infections he would be dealing with; it was harder though dealing with the fact that doctors can only do so much. I wish you and your family wasn't going thru this at all. I wish no one had to deal with any debilitating illnesses. I pray for you and your family that each day you will be comforted by God's Hands and knowing that He is there for you. As well as I. I am here for you and extend my thoughts and prayers to you.

Chocoholic · 07-26-2006, 12:56 PM

I'm sorry your family is going through all this. I pray everything will eventually turn out OK for all of you.

Jo_Luvs_Ketchup · 07-26-2006, 11:54 PM

Thanks everyone! Irene I'm so sorry to hear about your brother, but thank you for those kind words!

Well we just got my brothers blood work done for a second time and we talked to the doctor about the results and he said "the levels are the same, this can't be right, we need to do it again." It's getting ridiculous. My brother being autistic is petrified of needles, and all to have the labs come back the same AGAIN?

07-24-2006, 01:40 PM	#1
Jo_Luvs_Ketchup Member Eternal Member Forum 4000 Club Member Join Date: Aug 09, 2003 Posts: 4,195	I'm FURIOUS! As I mentioned to some people, my brother, who is 16 and autistic (Aspergers Syndrome), was recently diagnosed with Muscular Dystrophy. I just don't understand. My brother went to a specialist and he's convinced he doesn't have it. They ran a special blood test on him (I think this is right, but don't quote me on it) and I think if they level is over 7, the person has MD. My brother's level was 15. The doctor is like, no let's do it again. My brother is petrified of needles, so he was terrible during the test. And they want to do another EMG on him, which they put needles in his back to see the nerves or something. I just don't understand, if they level proved he has it, why is he trying to make him "not" have it?? Is this even right?? My brother is going through a lot and I'm trying to help him but being autistic makes it worse, since he doesn't like ppl touching or talking to him. And now because of the MD, he has scoliosis and the back brace didn't work so he has to have surgery. If all this is from MD, why is he saying he doesn't have it? This a$$hole is a specialist?? Anyone know what to do?? My mother's about had it, she's ready to break and I don't know how to help.

07-24-2006, 01:58 PM	#2
Moonlight Lady Member Forum Star Join Date: Aug 18, 2002 Posts: 16,052	That's awful. Poor guy. Can your mom take him to another doctor for a second or third opinion? I'm sorry to hear that your brother and whole family are having to go through that. I'll definitely keep you all in my thoughts and prayers. Some people should NOT be doctors.
	__________________ [

07-24-2006, 03:10 PM	#4
KristinHerreraFan Dana is Buena Senior Member Join Date: Jan 16, 2005 Location: Jacksonville, FL Posts: 2,791	I'm so sorry. I'll be praying for your brother. I hope all goes well.
	__________________ Signed, >>>>Kristin Herrera Fan

07-24-2006, 03:27 PM	#5
Courtnee MAN VS SAMMICH. Forum Star Join Date: Mar 23, 2005 Location: Louisiana Posts: 16,413	Aw. that's so sad. I'll be praying for him! I know how it feels though. My blood sugar was 200 this morning and it took an hour (no joke) to get any blood to come up and it hurt this time. But then my mom was astonished and made me do it again >_<
	__________________ Whether I'm the rose of sheer perfection A freckle on the nose of life's complexion The Cinderella or the shine apple of its eye I gotta fly once, I gotta try once, Only can die once, right, sir? Ooh, life is juicy, juicy and you see, I gotta have my bite, sir. Get ready for me love, 'cause I'm a "comer" I simply gotta march, my heart's a drummer Don't bring around the cloud to rain on my parade

07-24-2006, 03:53 PM	#6
Brian Damage I'm Rich Bitch Forum Icon Join Date: Feb 03, 2002 Location: What Ain't No Country I Ever Heard Of...They Speak English in What? Posts: 63,107	I am so sorry to hear your brother and your family going through all this. Believe me, I can relate. I will pray hard for you to get answers and to be at peace.
	__________________ The Key to the Kingdom of Heaven: John 3:3 *Money Doesn't Buy Happiness...But I'd Rather Cry in My Private Jet*

07-24-2006, 03:05 PM	#3
dawsongirl Member Forum Icon Join Date: Jan 04, 2001 Posts: 53,140	Well, it sounds like to me the doctor is just trying to do every test possible to make 100% sure he does or doesn't. Sounds excessive and frustrating, but it makes sense. But like Katie said, if you don't like the doctor, go to a different one. That's always your option.

07-24-2006, 06:00 PM	#7
Nighthawk76 Rachel Berry Forum Celebrity Join Date: Feb 28, 2003 Location: Illinois Posts: 23,254	I'm sorry that your brother and the rest of your family is going through such a difficult time right now, Kelly.

07-24-2006, 06:07 PM	#8
LuLu Rogers Colonel Brandon Forum Fanatic Join Date: Mar 23, 2004 Location: The Hogwarts Dungeons Posts: 11,013	I'm sorry Kelly! I will pray for your brother and your family. Maybe your family could try another doctor just to get another opinion. You never know.
	__________________ -Lauren- "I can teach you how to bewitch the mind and ensnare the senses. I can tell you how to bottle fame, brew glory, and even put a stopper in death."-Professor Severus Snape

07-24-2006, 06:33 PM	#9
Ireneparalegal LEGAL SPICE ;) Forum Legend Join Date: Jul 25, 2005 Location: OXNARD, CA - WHERE THE DALLAS COWBOYS TRAIN & PRACTICE Posts: 38,691	I am really shocked to hear this Kelly. My late brother suffered for over fifteen years of Muscular Sclerosis. He eventually passed away in 2004. The hardest part was not knowing what would occur next; what infections he would be dealing with; it was harder though dealing with the fact that doctors can only do so much. I wish you and your family wasn't going thru this at all. I wish no one had to deal with any debilitating illnesses. I pray for you and your family that each day you will be comforted by God's Hands and knowing that He is there for you. As well as I. I am here for you and extend my thoughts and prayers to you.
	__________________ DALLAS COWBOYS ARE HERE AT TRAINING CAMP!!!

07-26-2006, 12:56 PM	#10
Chocoholic Member Forum Star Join Date: Dec 01, 2000 Location: Between a rock and a hard place. Posts: 11,235	I'm sorry your family is going through all this. I pray everything will eventually turn out OK for all of you.

07-26-2006, 11:54 PM	#11
Jo_Luvs_Ketchup Member Eternal Member Forum 4000 Club Member Join Date: Aug 09, 2003 Posts: 4,195	Thanks everyone! Irene I'm so sorry to hear about your brother, but thank you for those kind words! Well we just got my brothers blood work done for a second time and we talked to the doctor about the results and he said "the levels are the same, this can't be right, we need to do it again." It's getting ridiculous. My brother being autistic is petrified of needles, and all to have the labs come back the same AGAIN?