and I don't think this would be right for the "COMPLAINT" forum.

As most of you know; I have a rare muscular condition called H.S.P. which stands for Hereditary Spastic Parapalesis. Well, since it causes gradual musle deteriaration, exercise is a MUST in order to keep muscle flexability. So, I've been taking physical therapy sessions regulary.

However, even though my mother, sister and brother say it looks like I'm getting better; my therapist recently told me that-I'm getting-worse. I didn't agree with her at first, but now that I think about it; sadly-I agree with her. :( :( :( (there; I've admitted it)

I haven't asked my doctor yet what he thinks; but; I think that he'll agree since he's increased my meds.

OK; thanks for listening you guys. I subscribe to an H.S.P. message board, but I feel better posting on this one.

Hey Joe, I'm sorry to hear your condition may be getting worse. Try and keep a positive attitude though. Maybe your doctor won't agree with the therapist. Maybe he'll agree with your family!

I'm sorry to hear about this, treky. I hope that your therapist is wrong snd that your doctor will tell you that you are making great progress.

i'm so sorry to learn about this. i'll be praying for you and hope that everything works out for you

That's why you stay positive and keep working at your therapy so you can prove your therapist and your doctor wrong ;)

That's why you stay positive and keep working at your therapy so you can prove your therapist and your doctor wrong ;)

:yeahthat You said it, Lauren! :)

That sucks Treky, maybe you could seek out another opinion, bring up the fact that you do feel better exercising.

Hi Treky. I'm glad you vented- I think venting is very therapeutic and this is a safe & supportive place for it. I hope you keep plugging away and prove that physical therapist wrong.

thanks to everyone who responded!

I'm sorry to hear that your disease is progressing. I know you're fighting it tooth and nail, but these things have a mind of their own. I'm glad you got your meds increased. I hope that's helped. I also hope you're not in much pain, Joe. That's my issue. PAIN.

thanx Janice; that really means a lot!

As I've said before, since your e-mail, I have sympathy for what you, Lauren and others with fibromyalgia are going through, and how painful it is for you.

thanx Janice; that really means a lot!

As I've said before, since your e-mail, I have sympathy for what you, Lauren and others with fibromyalgia are going through, and how painful it is for you.
Please read the link in my signature. There's an important Bill going before the Senate for a vote. Please read. Thanks Joe. :)

Sorry to hear you're not doing as well as you had hoped. As someone above mentioned it might be wise to see another doctor & get a second opinion. My thoughts & prayers are with you.

Please read the link in my signature. There's an important Bill going before the Senate for a vote. Please read. Thanks Joe. :)
I read the link, and I clicked on it and sent the letter.

I read the link, and I clicked on it and sent the letter.
:thanks: It's for us. :kiss:

you're welcome!:bighug:

Wow, treky, I had no idea this was going on at all with you. BUT YOU KEEP IT UP, YOU HEAR ME!! DON'T LET THE NEGATIVE WORDS AFFECT THE POSITIVE THINGS YOU KNOW IN YOUR HEART ARE GOING ON!!!!!! YOU ARE A FIGHTER!!!

thanx; I am. It's not easy doing the p.t. at times espessialy since I get so tired sometimes. (some mornings when my alarm goes off I'd giveanything to hit the "snooze" button and just roll over and go back to sleep. But I know I have to keep it up; so that's an incentive to keep at it.

Joe, stay strong, stay motivation and stay positive; you are a great person, and you seem like a fighter, keep up the amazing work!!!:)

Hang in there Joe. I'm so sorry that you have to go through all this. It just isn't fair. Stay strong and never give up. You're definately in my prayers. :)

thanx, everyone.

Good news! My doctor has increased my meds. and so far, it appears to be working!!!:) :) :)

i like to vent to it pisses me off when i try talk to people on im msn messanger and they wont talk back god its freaking ANNOYINGGGGGGG

i like to vent to it pisses me off when i try talk to people on im msn messanger and they wont talk back god its freaking ANNOYINGGGGGGG
that would be more appropriate for the COMPLAINT thread.

Hang tough, don't pay attention to your therapist's negative vibe and GET STRONGER!!! Then he/she won't have a leg to stand on. :rock: :jig: